Friday, May 29, 2015

Have Friday Night Plans??!

I am excited to update that we have started phase 3 of chemo!!! That means for the next 60 days we will go in for chemo every 10 days (or as close to that as we can) and do 2 different IV chemos. Every time we go in they up the dose of chemo 10%. So far Lily is handling everything pretty well. Yesterday was her first first dose of the treatment and last night she woke up screaming and just writhing. After about a half hour I was able to force her down some Tylenol and Zofran (anti-nausea) and she was able to sleep after that. Last night again she was having a hard time sleeping and I'm needing to give her pretty much a constant flow of Zofran. But during the day she plays, and walks around and laughs so so far it seems nights are when I hits her the most. 

The other great news to report is her blood counts. Last week her neutrophils were at 450 and this week they were at 1050, which is a huge improvement!! We  are so grateful to see that change. It was a little shocking to me that her counts could change that fast but it was a welcome surprise. Next week we dont have an apt so we are excited to take a break from going down to MSTI, even though we do have fun there, but a week to recoup will be nice.

In the meantime we have a couple other things going on. Tonight, May 29th at the Crux Coffee House in Downtown Boise, there is a benefit concert that was put together by a friend of Jake's
in honor of Lily. I still cant believe that people care enough to take time out of their own busy lives to put this together and preform! We are so incredibly blessed to live in such an amazing community and have such great friends surrounding us. The doors open at 7:30 and the show starts at 8:30. It a $5 dollar minimum donation at the door. If you cant attend but still want to help there is still a GoFundMe site for Lily  http://de.gofund.me/owa6lw and also a place where you can buy a T-Shirt for Lily.  https://www.booster.com/orangeforlily 

We are normally pretty humble people and we have mostly been able to support our family but with this rapid change of lifestyle and me suddenly having to quit my job its been so amazing to have such support and help from everyone. I wish there was a way to thank everyone personally but again I just want to say a genuine thank you for all the money, letters, birthday cards, gifts, and get wells that Lily has gotten. It has been a real moral booster for her, and taken a lot of stress off of Jake and I. 

We hope to see everyone at the show tonight that can come and for everyone that cant we just appreciate the support we have gotten. 

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